Sunday, November 27, 2011

November 27th Sunday: Tears...

November was great right up until the middle of the night on Wednesday the 23rd.

Charlotte woke up at about 2am with a shrill yelp and started throwing up. She did this 5 times throughout the night until about 6am when things finally calmed down and she slept a little. That morning she had a hard time to fully wake up, she was so groggy and sleepy. A fury of calls and doctor visits and we changed her drugs around, hoping that would make her feel better. Codeine was switched over to morphine and that steroid that I mentioned last post, that she has been getting a .5ml dose twice a day was boosted to a 2ml dose three times a day.

Our doctors here have been in close contact with the palliative care team at the Childrens Hospital. We were been told that it looks like her body has finally had enough, they think that she is on her last few days, maybe a week. I cant begin to tell you what that was like to hear. Days of tears.

In the few days since then we have had some improvements, her drugs are keeping her comfortable. Each day she seems to eat a little more, sit up and be a little more interactive too. For the most part she seems to be very peaceful and comfortable. A constant roller coaster.

We continue to pray. Please pray for us all.


  1. Kim Parfitt7:37 AM

    She is a beautiful girl, and I pray for her, and her family, to have strength. Thoughts and prayers are with you.

  2. Kevin and Delaine Stewart7:44 AM

    Thanks for the update. We will continue to uphold your family in prayer.

  3. Anonymous8:19 AM

    Allison and Rob, Yolanda and Charlotte. Continuing to think of you and to care. Keep each other close.

  4. Anonymous8:26 AM

    We are praying for you all, you are in our thoughts. The Belliveaus

  5. Continuing to pray for you all, especially Charlotte. Hugs and loves to you all.

  6. Will pray for you all. God is able to make all grace abound to you. May He bless you with peace that passes all understanding.

    In His love,
    Amy in AL

  7. Anonymous11:56 AM

    Oh Allison. I was in tears myself reading this last blog of yours. I cannot imagine what you all might be going through, but we will continue to pray for little Charlotte and you all. We will pray to give little Charlotte and yourselves strength and hope.
    She is so beautiful. I am sure she is proud to know that you and Rob are her parents. You are doing a fantastic job considering the circumstances. She is so lucky to have a wonderful, caring sister too.

    God bless you all and take each day one day at a time and make every day, even if they are bad, a good day.

    Take care and if you need anything just let me know. I frequent Cranbrook twice a week if you need someone to talk to or someone to run errands for you or just company for a bit.


  8. Anonymous12:38 PM

    You are in my deepest thoughts and I will pray for your family. May your angels bring you some comfort at this difficult time.....

  9. Dalton and Wendy2:44 PM

    Dalton and I are praying for you!

  10. Anonymous10:30 PM

    I am praying for you and your beautiful girls. I only know you through Natasha, but have been praying for you and Charlotte since the diagnosis. I have many people that you don't know also praying. God is Mighty.

  11. Anonymous11:22 PM

    My heart breaks for you and your family. How difficult this journey has and will continue to be for you. Please know that Charlotte's health and your hearts are in my prayers.

  12. Anonymous9:51 AM

    Your family has been in my heart and ever present in my thoughts since I first heard about Charlotte. I continue to hold you all in my heart during this unspeakably difficult time.

  13. Anonymous11:02 PM

    my thoughts and prayers are with you and your family and most especially Charlotte. I cannot even begin to understand what you personally and as a family are going through right now. As I read this post, tears are pouring down my face as I cannot even imagine hearing the words that you have been told. We are not supposed to outlive our children. I am sure that this has not been easy to update the blog while you are dealing with all of this but thank you for allowing us to share in your lives and hope that your burden is a little lighter knowing there are others to help you shoulder the weight. Bless all of you during this difficult time and know that there are many people out there praying and sending love for Charlotte.

  14. Anonymous11:57 AM

    Our staff at Core Fitness read your blog and all shed many tears. We are so sorry for all the pain you are all going through. We are doing a Zumba class on December 28th from 6:30-7:30pm by donation and we are sending the proceeds to your family. I wish we could do more. Feel free to spread the word about this class to anyone who wants to come out and support your family and have some fun, some laughs and get some exercise. Our prayers are with you.