Tuesday, February 08, 2011

February 8th Tuesday: Prayer request

Charlotte is having a tough time right now. And therefore we all are. She is so tired and grumpy. Most importantly she is not eating, anything, voluntarily. We are trying everything we can think of, old favourites, fruits, new sweets and treats but she is just not interested in eating. Our healthy diet has taken a back seat. On someone who only weighed 11.4 kgs at the start of treatment there is not a lot of room for weight loss. Within two weeks Charlotte’s weight is down to 10kg, this is the number that in the past our doctors said they would want to see a feeding tube. There are a couple of factors here; one is that she is having radiation and full anaesthetic every weekday- this makes her very tired, the second is that she is on a chemo drug that knocks out her appetite. Rob and I have resorted to forcing in what Yolanda calls “Magic Juice,” basically a thick green sludge of blended spinach, carrots, and apples. We draw up a 10ml syringe every 15 to 20 minutes and pin her writhing little body down. She cries and puts up a fuss, some ends up squirted on the ceiling, most goes down with much gagging... and we do it again in 15 minutes. Once she has gotten a few of these in she seems to perk up a bit and not fuss so much. We can see the effects of getting food in immediately, the days we get more in the better disposition she has too.

We just found out today that her chemo is going to be cycled- take it for 21 days, off for 7. Today was day two of being off the drug; hopefully we will see her perk up for a few days.
We have two things that we would appreciate your prayers for.

The first is if you would please keep Charlotte in prayer at 8:00 every weekday morning, this is the time that she has her radiation. We are praying that God will heal her through this treatment. Some specifics would be that radiation does its job, succeeds in killing any trace of tumour. That anaesthesia goes well each morning- that we will not have to up her dose should her body become used to the amounts used. (Some days she comes out happier than others, some days we can sneak in her eating a cup of yogurt while she is waking up- before she is protesting.) Also pray that Gods protection will be over her and any side effects will be nonexistent, both short-term and long term. That damage to other areas of her brain will be negligible.

The second is for her appetite. That she will be given the strength to start eating again, without any drugs intervention. That she will not be too tired to eat, and that she will not be so tired from not eating. She needs her strength for her treatments and for that she needs to eat. This would take a huge burden off of Rob and me, not having to chase her down with syringes all day.

Thank you all so much for your prayers and encouragements. We appreciate hearing that we are in your prayers- facebook, emails, comments on the blog- these messages are all cherished.


  1. Praying for your sweet Charlotte.

  2. Anonymous7:32 AM

    7:31am...beginning to pray for you....

  3. praying for Charlotte and for you all.

  4. Anonymous9:35 AM

    Still praying. Dale & Cheryl

  5. We are praying all day everyday for Charlotte and for your strength as well. May God keep you all and show His love abundantly. We love you all.

  6. We are praying for your precious Charlotte. May God heal her from this. <3 Stay strong!

  7. Shauna Sullivan4:09 PM

    We continue to pray for sweet Charolette and the whole family! Our thoughts and prayers are with you all.

  8. Michelle Q6:21 PM

    Lots of prayers from all of us at St. Mary's School!!
    xo Michelle

  9. Anonymous6:44 PM

    We are here, we are praying and we will pray at 8 a.m. and your precious little girl and her entire family are in our thoughts, even though we are so far away, you are in our prayers...Eugene and Karen Belliveau

  10. Anonymous9:04 PM

    My cell phone alarm is set for 7:58 am. Will pray....Delaine

  11. We will continue to pray in our family prayers which are usually right at 8 when the bus comes in the morning! Hope things can start improving soon- we will be up Friday and try to come see you!

  12. Anonymous6:40 PM

    My kindergarten class, at St. Mary's, prays for Charlotte almost every day.....at about 9 am. Don and I are praying for her at home several times a day and I will now specifically pray for her at 8 am each day I go to work. May God bless dear Charlotte with all she needs and a complete healing and bless each of you with strength, courage, peace and good health yourselves. Don and Linda Miller

  13. Anonymous9:46 PM

    We are following your blog and keeping you all in our prayers. May God bless you Charlotte.
    Mel and Dorothy Ratch, Cranbrook

  14. Anonymous10:32 AM

    You are all in my thoughts and prayers. I believe in miracles! Brenda

  15. Anonymous10:21 AM

    Aimsing Family,
    Our thoughts prayers and love is with all of you. Gasper Candice and Carter Aceti, Cochrane Ab