|Ewww, Im not sticking my hands in THERE!!!|
|OK, now that Mommys got it all cleaned out.|
It sounds like there were two ideas on the table during this meeting and by the end the conversation was based more on personal biases than on facts. One idea was to hit the cavity with a focal radiation; the other was to wait and see. They both have pluses and minuses of course and our problem is that there was no consensus between all our doctors. If the doctors would have all agreed on a treatment it might have made our decision easier. That will leave it more up to us to decide what we think the best course of action is.
Radiation would likely be 6 weeks of treatments, a rough and rotten 6 weeks for Charlotte. It would leave her with some (unknown) permanent damage. It might stop the cancer from coming back or changing again. But it might not. From the beginning we have been told that radiation for someone under 3 is not desirable because the brain is still growing so fast at that age. Is the cost worth a higher chance of a cure?
We have asked to meet with an oncology-radiologist to discuss what going through a focal cranial radiation would look like for Charlotte, what side effects- during the procedure and long term. We have also asked to meet with a neuropsychologist to discuss what targeting this area could do for long term mental and physical difficulties. We are also going to look into alternative treatments, just to see if there is anything else available for consideration. We have a lot more to learn before we make any kind of decision, unfortunately time is not on our side.
|Brain surgery pumpkin... not much to work with in there!|
|The Ronald McDonald House crew put on a fun afternoon!|